Reason sickle cell is not a death sentence — SCFN

Stakeholders in the health sector have urged Federal and State governments to earmark an appreciable percentage of their budgets for modern comprehensive care for those living with sickle cell disorder, SCD, saying, the disease was no longer a death sentence. VANGUARD reports.Information Guide Nigeria

They stated this at a public lecture in Lagos, themed: “Sickle Cell Disorder Is Not A Death Sentence,” held by Sickle Cell Foundation Nigeria, SCFN, to commemorate World Sickle Cell Day.

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Speaking at the lecture, Dr. Sonny Kuku said during his childhood, SCD was a death sentence in Nigeria, although carriers have changed their mindsets on the non-communicable disorder.

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Also speaking, Professor Ibironke Akinsete said numerous milestones in research and care have been achieved resulting in many carriers living longer productive lives and reduced incidence of strokes.

She said: “We hope that with some more research, a cure by Gene Therapy which does not require transplantation will be available. However, one area which has not received adequate attention in Nigeria and many other African countries is the area of modern comprehensive care. I know that this was the theme for the 2017 World Sickle Cell Day. But unfortunately, this has gotten very little attention.JAMB Result

“Nigeria has been reported to have the highest burden of sickle cell disease worldwide; however, care is still suboptimal, fragmented and uncontrolled. There is an urgent need for us to have controlled holistic, comprehensive management for those with SCD. This type of management has led to the affected person living longer productive lives; it has also reduced the incidence of stroke and many other complications.NYSC Portal

“SCD patients are best managed by a multidisciplinary team of professionals who deliver comprehensive care. It is a team-based approach that covers various aspects of the patients, physical, mental and social well-being.”